1977 – 2024
Celebrating 47 Years
of Education, Collaboration, and more!
Our Mission
The New England Regional Genetics Group was formed in order to serve as a consortium of genetics service providers, public health planners, consumer groups, and general and state maternal and child health personnel in New England. Its primary activities are to serve as a forum for the discussion of region-wide concerns regarding the provision of optimal services in clinical genetics and genetics education, and to undertake specific programs for the enhancement of genetics services in New England.
The New England Regional Genetics Network at the University of NH is researching family experiences with newborn screening in New England. They are particularly interested in hearing from families who had a result on the newborn screening test (“heelstick”) which required additional testing, either with a repeat newborn screening heelstick or other testing by a medical professional. Even if no follow-up was required, they would love all families to complete their survey.
You must be at least 18 years old to participate. If you live in New England (CT, ME, MA, NH, RI, or VT), you can enter a drawing for one of six $50 gift cards once you complete the survey. It may take about 15 minutes. Your opinions are very important in helping us learn how to improve the experience for others. The survey is completely anonymous. Survey will close March 22.
If you have any questions contact [email protected]. This research has been approved by UNH IRB-FY2024-125.
COMING NEXT WEEK!
Sponsored Speaker Series HPP – March 22, 2024 – Free Webinar – 12 Noon to 1pm
Diagnosis and Treatment of Hypophosphatasia: A physician and patient describe their partnership in treating a rare inherited disorder. Co-sponsored with Alexion AstraZeneca Rare Disease.
For any questions please contact [email protected] or call...
UPCOMING EVENTS
Evolving Strategies in Genetics and Genomics 2024: APC: The Eras Tour – March 27, 2024 at 3:00PM ET or March 28, 2024 at 12:00PM ET
2024 Vermont Family Network Annual Conference – April 2, 2024 9a-4:15p
Genetic Career Pathways Forums: Genetic Counseling – Wednesday, April 10th, 2024 from 6:30-7:30 PM (EST)
Have Questions?
Contact our Executive Director
For more information about NERGG and genetics resources in New England contact our Executive Director, Cynthia Ingham, RN, BSN.
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