New England Regional Genetics Group

A big THANK YOU!

eurordis rddFrom Lara Chapelle at EURORDIS:

First of all, a big THANK YOU for all of your efforts. Rare Disease Day 2016 was bigger and better than ever before! 

Key facts and figures!

Events around the world!

Participation and solidarity from everyone!

The Rare Disease Day official video!

  • Published in 34 languages with over 300,000 views!
  • Disseminated worldwide via sharing on social media, particularly facebook

Rarediseaseday.org website

  • A new look for our website was launched, which was more dynamic and engaging than ever!
  • 180,000 visits to rarediseaseday.org!

Hundreds of photos, videos and testimonies!

  • The number of testimonies more than doubled on the website!
  • See pictures of solidarity around the world; 'Raise and Join Hands'

Media coverage

  • Great media coverage all over the world: Rare Disease Day was prevalent in print, radio, television and online! Check out some of the things written around the world here on our media page.

Social media success! 

  • 36,000 tweets with #rarediseaseday on February 29. The hashtag trended in the UK and US.
  • The Thunderclap campaign reached nearly 1.5 million people on social media!
  • We reached over 6 million people on Facebook alone and likes on our page are now well over 77,000!

Now, we want to hear about your events and experiences on Rare Disease Day! Upload your photos and videos onto our website and send us your press clippings and links to videos if you had any media coverage for our media page!

If you haven't uploaded your 'Raise and Join Hands' photos you still have time. Upload them here!

Join us in making the voice of rare diseases heard!