NERGG 2005 Annual Meeting Agenda
Thursday, December 1, 2005
12:00
Registration/Lunch on your own  
1:00
Welcome: Leslie Ciarleglio, M.S., C.G.C., Senior Co-Director, NERGG, Inc.  
The Business of Genetics:
1:15
Regional Genetics Services/Newborn Screening Collaborative Grant,  
NERGG,Inc as the Umbrella Organization, Tom Brewster, M.D.  
1:45
Genetic Counselors Securing Licensure  
Kira Apse,M.S. and Jessica M. Goehringer , M.S., C.G.C.  
2:15
The Current Status of Billing & Reimbursement for Genetic Services,    
Leslie Cohen, M.S., C.G.C.  
3:00
Break  
3:15
NERGG, Inc. Business Meeting and Awards Presentations  
4:15
Keynote Address: Public Health Genomics in the 21st Century,   
Muin Khoury, M.D., Ph.D  
5:00
Committee Meetings Great Bay Room
6:00
Dinner Dining Room
7:00
Clinical Presentations (submitted abstracts) Great Bay Room
Moderated by Steve Amato, M.D. and Jeffrey Milunsky, M.D.  
State Department Exhibits Great Bay Foyer
Friday, December 2, 2005
Genetics and the Heart
7:15
Genetic Causes of Cardiomyopathy      Gerry Cox, M.D. Great Bay Room
Breakfast Presentation Sponsored by:  
Genzyme Therapeutics,  
or
7:30
Breakfast Buffet Dining Room
8:30
Evaluation of Congenital Heart Disease in the Fetus, Alan Friedman, M.D.  
9:15
In Utero Fetal Aortic Valve Dilitation to Avert HLHS,  
Louise Wilkins-Haug, M.D., Ph.D.  
10:00
Genetic Considerations in the Infant or Child with Congenital Heart Disease,  
Ron Lacro, M.D.  
10:45
Break  
11:00
Panel of Patient Perspectives  
Prenatal Diagnosis of Hypoplastic Left Heart Syndrome, Cynthia Gartner, parent  
When a murmur leads to heart surgery, Sharon and Dylan Eustace,  
Genetic Counseling Perspectives, Leanne Haskin-Leahy, M.S.  
12:00
Lunch Dining Room
Adult Issues Surrounding Various Cardiac Conditions
1:00
Adults with Congenital Heart Disease: Management of Heart Disease from  
Childhood to Adulthood, William E. Hopkins, M.D.  
2:00
Maternal Heart Disease and Pregnancy,  
Katherine Economy, MD, MPH  
2:45
Panel Presentation:   
Family Perspectives  
Maternal Heart Disease  Betty Leef  
Marfan Syndrome related heart disease, Paul Hartmann  
3:30
Closing:  Marge MacDowell,  M.S.W., NERGG Co-Director  
3:45
NERGG Inc. Board of Directors meeting  


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