NERGG 2006 Annual Meeting Agenda |
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| Thursday, November 30, 2006 | ||
12:00 |
Registration/Lunch on your own | |
1:00 |
Welcome: Marge MacDowell, M.S.W., Senior Co-Director, NERGG, Inc. | |
Regional Genetics Collborative |
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1:15
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Overview of the New England Regional Genetics and NBS Collaborative, Tom Brewster, MD, Project Director | |
1:30
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Maine's Dirigo Health Initiative: Is it good for NERGG? ,Robert McAfee, MD, Chairman of Dirigo Health Plan | |
2:30
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Massachusetts Mandatory Health Insurance Coverage | |
| Senator Stephen Buoniconti, Massachusetts State Legislature | ||
3:00 |
Universal Health Care and other state policy options for reducing the number of uninsured Americans | |
| Alissa Johnson and Laura Tobler, National Conference of State Legislatures | ||
3:45 |
Break |
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4:00
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NERGG, Inc. Business Meeting and Awards Presentations | |
5:00 |
Committee Meetings | Great Bay Room |
6:00 |
Dinner | Dining Room |
7:00
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Clinical Presentations (submitted abstracts) | Great Bay Room |
| Moderated by David J. Harris, M.D. and Greta Seashore, M.D. | ||
| concurrent with Consumer Event sponsored by Genetic Alliance | Windsor Charles Room | |
| Friday, December 1, 2006 | ||
Informing Patients of a Genetic Diagnosis: Providing Optimal Care |
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7:15
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Expanded Newborn Screening and Implications for Counseling Patients | Great Bay Room |
| Joan Kreutzer, PhD and Deborah Marsden, MD, MPH | ||
| Breakfast Presentation Sponsored by: Genzyme Therapeutics | ||
or |
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7:30 |
Breakfast Buffet | Dining Room |
8:30 |
Keynote Address: Genetic Testing: From Family History to high Complexity Testing |
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| Sharon Terry, President and CEO, Genetic Alliance | ||
9:30
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Optimal Practices in Delivering Diagnoses, John Moeschler, MD | |
10:30 |
Break | |
11:00
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Panel of Patient Perspectives: Receiving the Diagnosis: What Happens in Reality Jennifer Siedman, parent Julie and Alec McKinney, parent | |
12:00 |
Lunch | Dining Room |
1:00
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Chromosomal microarray analyses: Is having too much data problematic? , Charles Lee, PhD, Brigham and Women's Hospital | |
2:00
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Provider communication and patient responses in hereditary cancer syndromes, Wendy McKinnon , M.S., CGC | |
2:45
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Break | |
3:00 |
Provider and Parent: What's in a name? The search for the genetic needle in the haystack, Sharon Terzian, parent and Gerry Cox, MD, provider | |
3:45 |
Closing: Leah W. burke, MD., NERGG Co-Director | |
4:00 |
NERGG Inc. Board of Directors meeting | |
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