Consumer Corner

The New England Regional Genetics Group

would like to announce

The Second Annual New England Advocacy for Genetic Conditions Forum

Consumers of genetic services, advocacy organizations, foundation leaders and medical professionals are invited to attend this event.

This year we will be previewing the documentary film, Including Samuel, by Dan Habib. This film examines the educational and social inclusion of youth with disabilities as a civil rights issue. The film is built upon the efforts of Habib and his family to include their son, Samuel, 7, in all facets of school and community. Including Samuel also features four other families with varied inclusion experiences, plus interviews with dozens of teachers, young people, parents and disability rights experts.

The evening will commence with the viewing of the film, followed by a discussion on inclusion, led by Terri McLaughlin, the Transition Coordinator for the Parent Training and Information Center at the Federation for Children with Special Needs, Boston.

Betsy Anderson of Family Voices will share information about resources and activities of this national advocacy organization, and how you, too, can become involved. Time will also be devoted to an open mike session, networking opportunities and the sharing of success stories. The goal of the forum is to increase advocacy, sharing and regional networking.

When: Thursday November 29, 2007 at 7:00pm

Where: The New England Center at UNH

What: Dessert, Coffee and Forum

Attendance is free of charge, however registration is necessary.

Scholarships are available for lodging and participation in the NERGG annual meeting being held November 29-30, 2007 also at The New England Center. Funding is available though: NEW ENGLAND REGIONAL GENETICS AND NEWBORN SCREENING COLLABORATIVE HRSA GRANT # 1U22MC03959

Please contact Mary-Frances Garber, MS, CGC in the NERGG office for more details at 781-444-0126

Please bring any pertinent information regarding advocacy, support groups or foundations that you would like to share.

Click here to download the announcement and invitation.

Please fax to 781-444-0127 or email to mfgnergg@verizon.net by November 15th.