New England Regional Genetics Group

Rhode Island

Genomics Implementation

http://www.cdc.gov/genomics/implementation/states/Rhode_Island.htm

Rhode Island Department of Genetics Information

Genetics Contact:
Christelle Farrow, MPH
Sr. Public Health Promotion Specialist
Rhode Island Department of Health
3 Capitol Hill- Room 302
Providence, RI 02908
401-222-5950
401-222-1442(fax)
Email: christelle.farrow@health.ri.gov

Support Groups

Rhode Island Support Group Listing

General | Disease/Condition Specific | Pregnancy, Miscarriage, Stillbirth | Cancer

General:

Association of Retarded Citizens (ARC) of Rhode Island – 11 chapters in Rhode Island
(401) 463-9191
National website: www.thearc.org

Bereavement Support Group
Run by Care New England Home Health, Location Varies
(401) 737-6050 or (800) 348-6417

Center for Special Children, Hasbro Children’s Hospital
(401) 444-5685
http://www.hasbrochildrenshospital.org/Services/childrens-neurodevelopment-center/special-programs

Department of Human Services
(401) 462-6500
http://www.dhs.ri.gov/

Early Intervention
Main Telephone: (401) 462-2501
Info Line: (401) 462-5300
http://www.dhs.ri.gov/dhs/childrenwithspecialneeds/default.aspx

First Connections, formerly known as Family Outreach Program
(401) 222-1087
http://www.health.ri.gov/programs/firstconnections/

March of Dimes, Rhode Island Chapter
(401) 454-1911
http://www.marchofdimes.com/rhodeisland/

Rhode Island Parent Information Network (RIPIN) and Family Voices of Rhode Island
(401) 727-4144 or (800) 464-3399
http://www.ripin.org

Disease/Condition Specific:

Autism and PDD Support Group
Newport Hospital
(401) 683-7975 or (401) 683-6741

Cystic Fibrosis Foundation, Massachusetts/Rhode Island Chapter
(508) 655-6000 or (800) 966-0444
http://www.cff.org/aboutcffoundation/locations/findachapter/index.cfm?state=ma

Down Syndrome Society of Rhode Island
(401) 463-5751
http://www.dssri.org/index.html

Huntington’s Disease Support Group – Rhode Island Family Group
Rhode Island Hospital
(401)368-5123

Little Hearts of Rhode Island, Congenital Heart Defects Parent Support Group
Run by Lifespan at The Ronald McDonald House
(401) 444-8395

Muscular Dystrophy Association, Rhode Island Chapter
(401) 732-1910

Sickle Cell Family Support Group
Hasbro Children’s Hospital
(401) 444-7276

Pregnancy, Miscarriage, Stillbirth:

Miscarriage, Infant Death and Stillbirth (MIS) Group
(401) 274-1122, ext. 4049
http://www.mispals.org/

Parent to Parent Support Network
Women & Infants Hospital (for Special Care Nursery Families)
(401) 274-1122

Pregnancy After Loss Support Group (PALS)
(401) 274-1122
http://www.mispals.org/

Pregnancy and Infant Loss Support Group
Newport Hospital
(401) 845-1110

Cancer:

American Cancer Society, Rhode Island Chapter
(401) 722-8480
http://www.cancer.org

Breast Cancer Support Group – Women and Infants’ Hospital (English and Spanish)
(401) 274-1222

Gynecological Cancer Support Group – Women and Infants’ Hospital
(401) 274-1222

Metastatic Breast Cancer Support Group – Women and Infants’ Hospital
(401) 274-1222

Rhode Island Breast Cancer Coalition
(800) 216-1040

The Rhode Island Cancer Council
(401) 728-4800
http://www.ricancercouncil.org/