Genetics Resources for Community Health Centers

 

 

 

 

National

Prenatal/Pregnancy

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
(914) 997-4488

National Healthy Mothers, Healthy Babies Coalition
2000 N. Beauregard Street, 6th Floor
Alexandria, VA 22311
(703) 836-6110

National SIDS/Infant Death, and Pregnancy Loss Resource Center
2115 Wisconsin Avenue, N.W., Suite 601
Washington, DC 20007-2292
(866) 866-7437

Resolve: The National Infertility Association
1760 Old Meadow Road, Suite 500
McLean, VA 22102
703-556-7172

Share Pregnancy and Infant Loss Support, Inc.
St. Joseph Health Center
300 First Capitol Drive
St. Charles, MO 63301
(800) 821-6819

Specific Genetic Conditions

GENETIC ALLIANCE
4301 Connecticut Avenue, NW, Suite 404
Washington, DC 20008
(202) 966-5557

Genetic Alliance is an international coalition comprised of more than 600 advocacy, research, and healthcare organizations. The Alliance maintains a searchable directory of support groups and other information for hundreds of genetic conditions.

GeneTests
9725 Third Avenue NE, Suite 602
Seattle, WA 98115
(206) 616-4033
 Funded by the NIH, the GeneTests web site offers expert-authored reviews of genetic conditions as well as searchable directories of genetic testing laboratories and genetics clinics.

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue, P.O. Box 1968
Danbury, CT 06813
(203) 744-0100
 NORD offers written summaries of genetic conditions as well as a searchable directory of support organizations for more than 2000 rare diseases, including genetic diseases.

Genetics Professional Organizations

American College of Medical Genetics (ACMG)
9650 Rockville Pike
Bethesda, MD 20814
(314) 634-7127

American Society of Human Genetics (ASHG)
9650 Rockville Pike
Bethesda, MD 20814
(866) HUM-GENE

National Coalition for Health Professional Education in Genetics (NCHPEG)
2360 W. Joppa Rd., Suite 320
Lutherville, MD 21093
(410) 583-0600

National Society of Genetic Counselors (NSGC)
401 N. Michigan Avenue
Chicago, IL 60611
(312) 321-6834

NEW ENGLAND REGIONAL GENETICS GROUP (NERGG)
P.O. Box 920288
Needham, MA 02492
(781) 444-0126