Genetics Resources for Community Health Centers
By Location
Connecticut
Maine
Massachusetts
New Hampshire
Rhode Island
Vermont
National
By Type
Genetics providers/referrals
Prenatal/pregnancy
Specific genetic conditions
Newborn screening
Public health departments
Genetics professional organizations
Specific genetic conditions
Genetic Alliance
4301 Connecticut Avenue, NW, Suite 404
Washington, DC 20008
(202) 966-5557
Genetic Alliance is an international coalition comprised of more than 600 advocacy, research, and healthcare organizations. The Alliance maintains a searchable directory of support groups and other
information for hundreds of genetic conditions.
GeneTests
9725 Third Avenue NE, Suite 602
Seattle, WA 98115
(206) 616-4033
Funded by the NIH, the GeneTests web site offers expert-authored reviews of genetic conditions as well as searchable directories of genetic testing laboratories and genetics clinics.
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue, P.O. Box 1968
Danbury, CT 06813
(203) 744-0100
NORD offers written summaries of genetic conditions as well as a searchable directory of support organizations for more than 2000 rare diseases, including genetic diseases.