Resources and Educational Materials produced by
The Public Health Genomics Collaborative*
*formally known as the New England Public Health Genetics Education Collaborative

“Newborn Screening Tests:
They Could Save Your Baby’s Life”
A brochure providing general information about newborn screening available in sixteen languages:

• english
• arabic
• laotian
• spanish
• bosnian/serbo-croatian
• somali
• portuguese
• haitian creole
• italian
• chinese simplified
• chinese traditional
• russian
• khmer (cambodian)
• polish
• french
• vietnamese

Genetics Resources
For Community Health Centers
An online directory including information on:

• New England genetics centers & providers
• New England newborn screening programs
• New England departments of health
• Local & national prenatal/pregnancy resources
• Local & national genetics professional organizations
• Links to genetic support groups
• Links to information on genetic disorders

Family Health History
A slide presentation developed with the intention that professionals would use these slides for in-services, grand rounds and in various lecture settings for the education of medical care providers regarding family health history. The presentation may be used in its entirety or condensed.

Understanding Genetics: A New England Guide for Patients and Health Professionals
This 80-page manual contains educational resources on genetics for patients and health professionals in New England region and increases awareness of specialty care in genetics. It offers a basic introduction to genetics concepts and describes the different types and applications of genetic tests. It also provides information about the diagnosis of a genetic disease, family history taking, newborn screening, and genetic counseling. A section on local information focuses on patient care, patient and professional education, and specialty genetics services in the New England states.

Genetics Resources: A Regional Directory
Originally developed by the CT Department of Public Health out of concern that a lack of general, current genetics knowledge among public and medical professionals could result in missed health promotion opportunities. The expansion of the directory to include resources outside Connecticut was undertaken by the New England Public Health Genetics.
Education Collaborative of NERGG, Inc.

Content Includes:

• Introductory chapter on health and genetics
• Umbrella organizations and references
• Alphabetized listing of genetic support organizations with
• Web resources and recommended readings
• Glossary of common genetic terms
• Genetic services by state; specific services provided

Projects in Progress