NERGG Links
"A Parent's Guide to Newborn Screening" A video produced by the March of Dimes to educate parent's about newborn screening.
Genetic Alliance a coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, Provides information about support groups.
Genetics Home Reference Website provides consumer-friendly information about genetic conditions and the related genes and chromosomes. This website is a resource of the National Library of Medicine.
Genetic Testing for Hereditary Breast & Ovarian Cancer: What You Should Know
Information for Genetics Professionals, through KU Medical Center, is a link to a wealth of information for genetics professionals, educators, and interested individuals, including a comprehensive listing of genetic conditions and national support groups.
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National Center for Hearing Assessment and Management, Utah State University, to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.
National Newborn Screening and Genetics Resource Center provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
National Organization for Rare Disorders: NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
New England Genetics Collaborative: one of seven HRSA supported Genetic Services and Newborn Screening Regional Collaborative Groups. All of the Regional Collaboratives are administered by the National Coordinating Center at the American College of Medical Genetics (ACMG)
The Family Village is a prize-winning site created for individuals with disabilities and their families. It includes information about many conditions, support groups, specialized products, chat groups and much, much more.
The March of Dimes is a national organization providing information about how to have a healthy baby and support networks if there are problems.
The Maternal and Child Health Library offers a selection of current resources about providing and strengthening EPSDT services. It includes guidelines for the frequency, timing, and content of health promotion and disease prevention services for infants, children, and adolescents.
The knowledge path is aimed at health professionals, program administrators, policymakers, and families.
Knowledge paths on other maternal and child health topics are available here.
Educational Materials Produced by NERGG