NERGG Links

"A Parent's Guide to Newborn Screening" A video produced by the March of Dimes to educate parent's about newborn screening.

CDC’s Genomics and Population Health: United States 2003 Report

Genetic Alliance a coalition of hundreds of genetic advocacy organizations, health professionals, clinics, hospitals and companies, Provides information about support groups.

Information for Genetics Professionals, through KU Medical Center, is a link to a wealth of information for genetics professionals, educators, and interested individuals, including a comprehensive listing of genetic conditions and national support groups.
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National Center for Hearing Assessment and Management, Utah State University, to ensure that all infants and toddlers with hearing loss are identified as early as possible and provided with timely and appropriate audiological, educational, and medical intervention.

National Newborn Screening and Genetics Resource Center provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.

National Organization for Rare Disorders: NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

The Family Village is a prize-winning site created for individuals with disabilities and their families. It includes information about many conditions, support groups, specialized products, chat groups and much, much more.

The March of Dimes is a national organization providing information about how to have a healthy baby and support networks if there are problems.

Genetics Home Reference Website provides consumer-friendly information about genetic conditions and the related genes and chromosomes.  This website is a resource of the National Library of Medicine.

The Maternal and Child Health Library offers a selection of current resources about providing and strengthening EPSDT services. It includes guidelines for the frequency, timing, and content of health promotion and disease prevention services for infants, children, and adolescents.
The knowledge path is aimed at health professionals, program administrators, policymakers, and families.
Knowledge paths on other maternal and child health topics are available here.