New England Regional Genetics Group

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Share Your Story

Share Your Story

Help educate policy makers. Share your family’s story before October 31, 2015, and be eligible to win a $50 Target gift card. 2015-10-negc-survey

Our Diagnostic Odyssey

Our Diagnostic Odyssey

On the Powerful Patient, Joyce and Robin speak with Patricia Weltin about the difficult road to diagnosis for her daughters, and what she has learned that can help others. See http://www.powerfulpatient.org/our-diagnostic-odyssey/

Patient Engagement

Patient Engagement

Joyce Graff represented NERGG on a panel at the recent World Congress Patient Engagement Summit, along with Dr. Peter Elias and Nancy Finn.  Joyce made the point that patients are looking to their healthcare professionals for “personalized wisdom” about how to manage their health.  See http://www.worldcongress.com/events/HL15021/