New England Regional Genetics Group

Posts tagged usher syndrome

Making the World a Better Place

Making the World a Better Place

by Mark Dunning My daughter Bella has a genetic disorder known as Usher syndrome type 1b. She is deaf and she is losing her vision due to retinitis pigmentosa. She also has vestibular issues caused by Usher syndrome. Thankfully the end of Usher syndrome, of vision loss and hearing loss and vestibular issues, is inevitable. Just look at […]