
Meetings and
Events![]() |
Research Studies![]() |
In the News![]() |
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Surviving to Thriving: Northeast Regional Seminar: CHARGE Syndrome |
Parents of Children with Undiagnosed conditions The National Human Genome Research Institute at (NIH) is sponsoring a study that seeks to learn more about how parents of children with an undiagnosed medical condition think and feel about their child's condition. Men and women who are 18 years or older and have one child with a medical condition that has remained undiagnosed for more than 2 years are needed to take part in this study. For additional information, you may review the Notice to Participants: www.surveymonkey.com/Study NoticeUncertainty Autism Research Study: In an effort to better understand Autism Spectrum Disorders for earlier diagnosis and better treatment, we at Children's Hospital are collecting data on children 24 months and older with a diagnosis of ASD. |
-How to Deliver the News? New Advice for Doctors Diagnosing Prenatal Down Syndrome -Human Genome Research Institute launches improved online talking glossary of genetic terms -Prenatally and Postnatally Diagnosed Conditions Awareness Act |