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Surviving to Thriving:
Improving Long-term Outcomes in Sickle Cell Disease
Thursday, September 16, 2010
8am – 2pm
Boston Colonnade Hotel
Northeast Regional Seminar: CHARGE Syndrome
September 24-25, 2010
Marriot Boston – Quincy, MA
This two day Seminar will focus on students with CHARGE Syndrome and is designed for parents and professionals. This seminar is being conducted by three leading authorities on this topic: Meg Hefner, Genetic Counselor, Associate Professor of Pediatrics, Saint Louis University School of Medicine will present, “CHARGE 101: the basics of the diagnostic criteria, medical features, early development, and genetics of CHARGE” Dr. Tim Hartshorne, Professor of Psychology, Central Michigan University will present, “The “B” in CHARGE: Making Sense of the Behavioral Issues” and Dr. Nancy Hartshorne, School Psychologist, Program Consultant, Professor at Central Michigan University, will present “Thoughtful Assessment and Planning for Education.”
Cost: Professionals: $125.00
Parents: $75.00
Space is limited
Please submit registration and conference fee made payable to Perkins School for the Blind; Perkins Training Center, 175 North Beacon Street, Watertown, MA 02472 by Wednesday, September 15, 2010.
CLICK HERE FOR MORE INFORMATION ON HOW TO REGISTER!
Here’s how to contact us!
Email: PerkinsTrainingCenter@Perkins.org
Phone: 617-972-7712
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Parents of Children with Undiagnosed conditions
The National Human Genome Research Institute at (NIH) is
sponsoring a study that seeks to learn more about how parents
of children with an undiagnosed medical condition think and
feel about their child's condition. Men and women who are 18
years or older and have one child with a medical condition
that has remained undiagnosed for more than 2 years are needed
to take part in this study. For additional information, you
may review the Notice to Participants:
www.surveymonkey.com/Study
NoticeUncertainty
Autism Research Study:
In an effort to better understand Autism Spectrum
Disorders for earlier diagnosis and better treatment, we
at Children's Hospital are collecting data on children 24
months and older with a diagnosis of ASD.
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-How to Deliver the News? New Advice for Doctors Diagnosing Prenatal Down Syndrome
-Human Genome Research Institute launches improved online
talking glossary of genetic terms
-Prenatally and Postnatally Diagnosed Conditions Awareness Act
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